3.3K views · 42 reactions | Epidermolysis Bullosa (EB) 曆 is a family of rare genetic disorders that affect the body's largest organ: the skin. Learn the basics of this life-threatening disease. https://www.ebresearch.org/what-is-eb.html | EB Research Partnership | Facebook

Epidermolysis bullosa . Epidermolysis bullosa (EB) is a very rare genetic skin condition and in worst cases can be fatal . Its diagnosed from birth by the neonatal team . This condition has 3 types and can vary from mild to severe. At present there is no cure of the condition and treatment is targeted to prevent complications . . In Pakistan there is lack of support for the children (and their parents ) with the condition .These children and their families need ongoing support with regards to tr